So, I had Blair post the definition of a hemangioma, because apparently I have one in my spine, grown in the bone, and no one told me till I recently had my doctors' nurse print of some results of an MRI I had done last Jan.! WOW - so maybe that is why I am in constant pain!
Friday, October 24, 2008
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Hi my name is Jana - I found your blog and wanted to let you know about an organization I founded to support patients with Gorham's disease. It's the Lymphangiomatosis & Gorham's Disease Alliance - www.lgdalliance.org. Please feel free to contact us anytime. We have a large patient community, resources and a discussion forum.
Jana Sheets
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